I’d love to talk about that as well because you said Access to Work and I think that so many people don’t know about it. And I think those who do know about it now are still kind of—there’s a massive waiting list with everything in the UK, right? So it’s like I think you have to wait months and months and months for it.
But can we explain just what Access to Work is? Because you said it massively helped you and obviously I know it’s changed a lot of people’s lives. It’s incredible actually what they’re offering. So I’d love to just, like, you know, can you explain a little bit about Access to Work and how it all works and how people are going to get a hold of it?
Yeah, and they have a whole chapter in my book, *ADHD Works at Work*, and a course. And a course. I’ve got three courses.
What Access to Work is, is a UK government scheme from the DWP, which is very ironic because they talk a lot about disability and pensions and benefits, and this isn’t a benefit, it’s a grant. So it’s not like a disability benefit, and anyone with any health condition can get up to £69,000 a year per person of funded support to help them at work.
The whole point is, which I don’t know how good this is, but the whole point is to help someone stay in work because I think it’s more expensive for people to leave the workforce because they’re not able to stay in it because of a health condition, and then to retrain them and get them back into it. But the whole point is that it keeps you in your work.
You mentioned the waitlist. The waitlist now is six to seven months, quite long. The application is not very ADHD friendly. That’s why you may want to do my step-by-step free course because it is incredibly, incredibly helpful.
It’s one of these very frustrating loopholes basically. Like if you can withstand the very, very painful application. I basically fight with Access to Work every single day because we have a lot of coaching clients that get funding from there. We have a lot of employers that we’re helping to navigate through the process, and the process doesn’t always work.
Like if we want to talk to Access to Work, we have to call them up and it takes like an hour on hold on the phone. They’ll only talk to you about like one person’s case at a time.
Adulting. Yeah, it’s a very stressful life.
But I know all the guidance off by heart. But it’s great. It can be really great. Like, you know, it helps me with, what was it called, a virtual assistant, like someone that helps me with all my admin. I would not be here without them honestly. I wouldn’t do anything that I do. And especially the coaching.
But it can pay for all kinds of things like laptops. It won’t pay for reasonable adjustments, which are like what an employer should pay for, but it can pay for people to have support additional to that. So anything like chronic fatigue coaching or any kind of specialist equipment that might be useful or helpful. It can pay for travel. So it’s a super, super, super helpful scheme.
The only problem with it is that it is highly inaccessible. And sorry, I should have said, if you are—and any founder should know this—if you were due to start work in the next four weeks, I believe, or to become self-employed in the next four weeks, then your application will be fast-tracked.
Like, you know, we’ve hired two employees at ADHD Works in the last couple of months and both of these people got their application within the week.
Oh wow.
Yeah, shortcuts.
That’s really crazy. So is that because they want to make sure they’re prepared for the job and that it doesn’t fall through?
I don’t know.
I guess because like you said, it’s more expensive to leave.
You have to know about that. Obviously I know about it, so as soon as I had them apply for Access to Work. But for most people, first of all their employers don’t know, second of all even if their employers do find out, then they’re like what is it? And again it’s very inaccessible, so it’s quite confusing for them to know how to engage with that process.
And then even if they do apply for it and they get that funding, then there’s a huge mix-up on education for the employers of knowing, like, is this a reasonable adjustment? Do we need to do anything else for them? Especially if there’s a delay, which often happens, which is why I write about it in the book, because then they can get a bit mixed up because someone just has to tell their employer about it when they apply.
Yes, so it’s super, super helpful. But I think most people probably in reality wouldn’t tell their employer, especially if they’ve just got a new job, to be like I’m going to apply for Access to Work. Because you obviously have to tell them about how you struggle at work.
So it’s quite a vulnerable thing to do, but I don’t think a lot of people feel comfortable doing that and admitting things, which is tricky.
But I’d like to focus on the founders at the moment just because that’s most people who watch this podcast.
Yeah.
But I think that the question is, I think it’s so difficult with all that sort of stuff. You’re a little bit skeptical about whether the government is actually going to follow through. And like you said, there’s a six or seven month waiting list. How often do you think people get rejected as well, and what are the criteria? Because you said £69,000 is a lot of money, but even if you just got £15,000 or £20,000, that’s a lot of money that would help possibly exactly anything.
Like, you know, that’s going to be life-changing to a lot of people. I know that it’s not a life-changing amount in terms of you’re going to go buy yachts and jets and stuff, but it is a life-changing amount for someone with ADHD who’s stressing as a founder, who can’t do all these million different things and would like to have a VA, an ADHD coach, just kind of help manage their brain a bit more and understand themselves a bit more. It’ll be life-changing literally.
It’s life-changing.
But how? Do people get rejected? I’m guessing they do, and under what grounds?
No, they don’t. No, they don’t get rejected. But they also say they don’t need a formal diagnosis. You don’t need a formal diagnosis of anything to apply, which is great.
Because not to get too technical, as in law basically it’s a legal test, it’s not a medical test. They’re not giving you specialized support, but as I say it’s a very inaccessible process in general. Very admin heavy, very asking questions that are not really very neurodivergent friendly.
Like how many hours a week do you need the support? You’re like, I don’t know the answer to that. What support? Yeah, I don’t know what support is available. Like one week? I thought I worked 100 hours a week and I do. I genuinely work 100 hours a week. I work from 6:00 a.m. until midnight every day.
Even when you’re sleeping, your brain—
Exactly. I work nonstop.
But what does happen very often is that you apply and then it is literally just luck of the draw. You get a case worker. They’ll open your case and they will usually do an independent assessment for you. They refer you to like a third-party person, which actually the majority are pretty nice.
Again, it’s just luck of the draw. If you get a nice person, they might help you.
So for example, if you apply and you want coaching, well I’ll tell you my experience. The first time I applied was basically after being told about it by a coach that I talked to completely by chance, and I was like I need her help.
They did this whole process. The assessor talked to me and I was like I would like coaching with this woman. She understood my brain perfectly. She was going to change my life.
And he was like yeah, it was like self-effectiveness. Then he basically awarded, after all this months of waiting and challenge and having to talk to my employer about it, like £750 for coaching with a provider that wasn’t specific even to ADHD.
And I was so angry. I was like after all of that, are you kidding me?
And then I said, if you’re making me go through all of this process, why can’t I just get the support from this person? I’d rather use that money for her.
And the thing is you actually can use the funding with the supplier of your choice. So they don’t have to. If they give you £750 and you want to use that with a different person, that’s up to you.
But I appealed it. I applied for a reconsideration, which I didn’t think would work, but I was so angry and so emotional and so like this could be the thing.
And I was like also if I get this coaching with these people that are not specialists in ADHD, it’s not going to be helpful. My employer is going to be really angry because they’re going to have higher expectations.
I think they were like, just give it to her.
Then they gave me the funding for my coach. And I was right because it wouldn’t be a useful use of taxpayer money to have given me that funding for coaching that wasn’t specialized to my needs.
But the coaching that I had genuinely enabled me to stay in my job. I was working on all of the COVID legislation at the time, mental health and immigration, Brexit. It was very stressful.
But I stayed in it. I did it. I did stuff for the country. I returned the favor and now obviously hopefully helping a bit with the ADHD crisis that the country is in.
But yeah, it is honestly life-changing. Without coaching I would have just burned out and crashed out. I was living over the road from my job and then just happened to knock. No one made me, I was just so determined not to quit that I was like I’m going to live on chicken.
Oh my God, get it.
Yeah, so that’s not actually that effective of a long-term strategy. And then that office shut down anyway.
Oh my God.
Not my fault. And then COVID hit.
So yeah, it was interesting times.
Sorry, that was a huge tangent for your question.
No, that was great.
You just mentioned the ADHD crisis our country is having, so I want to touch on that because there’s so much in the news and I don’t know what’s weird and what’s not.
But I know that so many people I know who have relied on ADHD meds all their life are now going, oh my God, what do I do? Because it’s this massive shortage and they just feel like they can’t function. They are stripped of everything they know about themselves and some people are turning to recreational drugs now as a result just to compensate for what it is.
And also just again, with the diagnosis, people who sort of have been going most of life having all these symptoms, they don’t know who they are and they suddenly realize actually I might have ADHD. They’re having to wait, what, it’s now two years or something for an official diagnosis?
Seven years. Seven years, ten years.
What? I don’t understand how that can be. I don’t understand how it such a delay but why?
That’s why I wrote that book, *ADHD: Do You Need to Know?* because there’s a whole long story.
But when I was diagnosed, to give the context, I was diagnosed and I didn’t think I had ADHD. I just knew that I didn’t fit into society after studying law, graduating, went over to Australia, kept starting jobs, quitting them, didn’t try living the original life.
And then I basically became really suicidal all the time, but then I would wake up feeling fine. I was like we’re not going to tell anyone about that.
And then I was completely all over the place, being like I’m completely insane because how can I feel that bad and then wake up feeling fine?
Started Googling it, being like I’ve got every single one of these conditions, bipolar, borderline personality. Like how can someone have all of the conditions?
I was terrified. I remember how absolutely terrified I was to go to a doctor. And I kind of mentioned it to a GP once or twice and they were just like, oh you’re fine. You’ve got a law degree.
I was like well they think I’m fine, and then I feel exactly the same that night.
But eventually I became very, very bad and decided to end my life. Fortunately I got ADHD, I’m still here.
Terrible humor to laugh.
I always make that joke and I do talks in companies and they’re like what did she just say?
And then I follow up with no one ever laughs at this joke and I think it’s because I only did half a stand-up comedy course.
But luckily at that point when it got really, really serious, I decided to go to a psychiatrist because I was like you know what, you might as well. I was literally ready to be taken to hospital all the time.
Because I’d never talked to anyone about what was going on in my head properly.
So I just decided to do it. It cost me thousands of pounds and I didn’t even have a GP in England.
And they said, yeah, you’ve got ADHD.
I was like no, I’ve got a rare problem.
And he was like no you don’t. You’ve got really bad ADHD.
I was like well fine then, actually give me your drugs.
I was like that’s actually not that bad. I’m not going to hospital now.
And he was like no, I’m not going to give you drugs straight away. You have to come back. We have forms.
It’s all very painful, part of this process that everything to do with ADHD seems to be an incredibly un-ADHD-friendly process.
He was like we’re going to give you these forms to get your friends and family to fill in and look at your school reports.
And I was like first of all I have no friends and family because I’ve had bites of all of this. And also I have no idea where my school reports are.
And I had a holiday the next day for two weeks to Bali.
So he said come back after your holiday.
I went to Bali and met a stranger on the beach and moved in with him and did a partner visa.
And then a year later I came back and I was like I believe you. ADHD is real. Okay yes, I believe I have ADHD now.
And then I finished off that diagnosis, went on the medication and it was life-changing already.
Because he mentioned ADHD to me, I kind of looked into it a bit more and it was only when I learned about the emotional dysregulation part, which is commonly associated with this thing called rejection sensitive dysphoria, which is basically extreme emotional pain at real or perceived rejection that can lead to very, very strong emotional mood swings including feeling suicidal.
I was like, oh, all right. That I accept.
And yeah, once I got that diagnosis my life completely changed because of the medication.
Although it’s a long story, but that medication made me really, really unwell initially because I had to pay £300 for it every month and I had no money.
So being diagnosed didn’t make things better overnight either. It just made me more like, woohoo, now I know this about myself. I’m going to make all of these impulsive decisions and now I know my life.
And then being like actually nothing has changed.