So I wanted to—well, I’ve been working with autistic people and ADHD for years now, and I very much like how when I’m coaching autistic people, I’m like it’s just normal, and they’re like, no, you’re autistic.
Like yeah.
And then I was like, oh actually, the more that I learned about it, there’s a 50 to 75% crossover of ADHD and autism. I was like, oh this actually is very, very relevant.
Family members of mine have been diagnosed and so I was like, yeah, definitely autism.
But I was like, what’s the point in getting an assessment? So I was very much in this camp for a long time where I was like there is literally no point in me getting told that I have something I already know that I have.
And that’s what I would say for most people out there, is like that assessment—yeah, it’s very amazing and you’re diagnosed—but nothing actually changes.
It’s really an anti-climactic because like I didn’t know I had ADHD which is why I said its life-changing in a situation I said it is really life-changing the diagnostic itself I’m like yeah whatever. Give a drug I was like I don’t really care what this thing is like just sort it out. Because nothing else changed.
It can be a really, really lonely, emotional, difficult process. And so many of us are like, now it all makes sense. It’s not my fault. I’ve been beating myself up for being lazy all my life.
And nothing has actually changed.
Yeah, that’s true.
But also it wasn’t your fault before that diagnosis either. You were just doing the best that you could.
So I’m making a new course called a Neuro-Affirmative Certification Program because basically that’s what I want to—you don’t need that diagnosis to be able to give yourself that kindness and understanding, and the same to other people because we all do think differently.
Sorry, let me think back now.
Yeah, so my autism assessment. I met someone that said that she had an autism assessment of like £750 and I was like, oh, I’m going to do that. And I was like, well I might as well just do it then if it’s cheap-ish.
And I was like, it would be helpful to just know, especially because this year I’ve really, really struggled with the autism symptoms.
And I’ve started dating someone that has ADHD and our manifestations are very, very, very different.
And I was like, oh maybe I’m very, very autistic.
And it was really impacting my life, but again I knew that it wasn’t going to change my life to just be told I’m autistic.
But most recently I was like, you know, I’m just going to do it.
I signed up for this assessment. They booked me in straight away to a three-hour call and then they sent me over some questions to answer.
And the questions were just so bad. I was filling them in and they were just like—they were questions like, do you have problems with your nerves?
And I was like, what kind of nerves?
Also, you don’t know.
Exactly. Like mental nerves? Physical?
And then they just asked, do you take medication for your nerves?
I just really—I guess I’m autistic from their questions.
And then also, question forms for a partner. So my boyfriend was weighing in and he was like, yeah, why are you doing this assessment?
He was like, why are you skimping on something that’s going to change your life so much?
And then I was like, actually right.
And he was like, especially for you. You know the ADHD is such a huge part of your life. Why are you not doing this properly?
Oh, I guess you’re right.
So luckily I canceled it, managed to get a refund, and then went with Dr. Becky Quick of Autism Girls, who I had seen posting on LinkedIn, and the other person, Hattie Richardson. Their posts were just really, really resonant with what I experienced, so much that I was like, oh these people get it.
I think with a lot of women, they are hesitant, similar to me, about going for any kind of assessment because it’s weirdly like an exam that you don’t want to fail because if they tell me that I’m not autistic, then I’m just not liked.
So it’s weird, especially if you have grown to kind of identify with this, to then be told actually by someone else like you don’t fit this criteria because it’s based on little boys basically, and it’s really outdated.
It’s really emotional and difficult.
But I’m really, really, really glad that I’m doing it with them.
And they had a call with me initially, like a free half-an-hour call, going through why do I want an assessment, how is it going to change my life, and they kind of did a bit of pre-work to tell me if it was worth going ahead, which was really useful.
And then she sent me so many forms again, but they were quite fun forms.
They literally sent me like three different forms in the post, forms by email, including ones for other people to fill out.
And she sent me these extra quizzes about masking and a couple of things called alexithymia and monotropism, which are manifestations of autism.
So the first, alexithymia, is difficulty in recognizing and feeling emotions, which I got 99% on.
And monotropism, which is like very intense solo focus.
And even doing these things made me be like, oh my God, I can see myself so, so much in this.
So again, really long answer, but I think it’s just worth thinking about what you’re going to get from it because it can be really, really validating.
And unfortunately, we are in the world right now where labels matter.
If you have a child in school, they’re going to need that formal assessment. And realistically, if you’re going to go to your employer, you’re going to want to have a formal assessment to be able to point to something if you get a bad response.
But it’s not perfect. It’s got a long way to go.
So hopefully things get a bit better.
But if you get the diagnosis, it doesn’t make that much of a difference in some ways because obviously, like you said, it’s not your fault and it never was your fault.
But I do feel like that’s the internal kind of validation and understanding.
But I do believe that it provides external validation.
And I think for a lot of people, like you said, maybe their parents or family, friends, old bosses or whatever, would consider them to be lazy or didn’t understand them or, you know, you’re too manic, or all these things that people get told. All this different things.
And actually they can be like, well there’s a reason why I was that. I wasn’t just being difficult or I wasn’t just trying to be disruptive. That is actually a condition that I’ve got and I can’t help it.
I think that would give a lot of peace to a lot of people because I think, like you said, with the whole social rejection thing, it’s really hard to take.
And then you’re thinking, okay, well this person doesn’t like me because of this and it’s affecting me because of this.
I feel like there must be something in it for that.
No, yes. It can help with external validation and understanding I think.
And that’s basically why I made this course, this neuro-affirmative course.
Because as much as we would like to think that, and as much as when you get diagnosed with something like ADHD, you go on your own very intense journey and your whole life has changed, your identity, for everyone else in your life it depends on the people and their own experiences and opinions and prejudices.
For me personally, when I was diagnosed with ADHD, literally no one cared.
Actually, just one of my family members said it wasn’t real and they were not going to change their mind.
And everything else didn’t really change anything. They were just like, oh, okay.
And I think that’s one of probably the most disappointing and most difficult parts about it.
You do think that you’re like, oh my God, then I’m going to have this reason.
But it’s not—we always say ADHD is not an excuse, but it’s an explanation.
And then you can understand your brain better.
And that’s why I think everyone, if we all treated each other like that, because some people are not diagnosed.
ADHD has only been diagnosed in adults in the UK since 2008.
So many people are not diagnosed. They don’t know that they’re even neurodivergent.
But if you can just appreciate that most people are just trying their best, they’re not lazy, they don’t want to get in trouble.
Like these kids at school that are not going to school, they’re not doing it because they just don’t like going to school. They’re doing it because there’s obviously a reason that they’re not going.
And so instead of fining their parents, the government should understand what that reason is and try and make these environments a bit happier to be a part of.
But yeah, it’s a really difficult thing.
And I think for me now, I’m getting this autism assessment. It’s really funny and sad because I’ve done all this work of ADHD for the last six years and I’m literally the walking ADHD person, stamped on my forehead.
And going through this autism thing now, it’s been strange.
I’ve really not talked about it very much publicly because I felt a bit of an imposter, even though I feel very confident in it.
But I told a friend of mine, oh I’m actually getting an autism assessment, and she was like, you don’t have autism.
Why do people always think that they know you better than you know yourself? I just don’t understand that.
She was like, lots of people are like you.
And I was like, this just—
And she was like, I could get diagnosed with autism if I went for an assessment.
I was like, I know you could because you’ve got a really interesting approach to social interactions there.
And she has got a lot of autistic traits herself.
But she was like, why do you need a label?
And I was like, yeah, I already have a label that’s really helped me a lot.
And I just shut down emotionally and I stopped.
I was just like, I actually don’t even know what to say because it’s so ironic.
She was just saying all of the textbook things that I literally talk about every single day with ADHD.
I hear this stuff every day from people, bad reactions and family and friends and all these people being like, you don’t look like you’ve got ADHD.
And she was just saying all the stuff.
And I was like, you’re one of my best friends.
We’re not friends now. We have not spoken since then because I was just like, oh my God.
I was like, surely you must think that of me for the last five years then as well because why would autism be any different from ADHD?
And I was like, for me, it’s just something that I think is going to help me with this understanding.
I shouldn’t have to justify it or explain it to you.
If your friend is seeking out help, you should just be happy for them and listen to them.
And I guess this inspired me to make this course.
I was like, you know what, I’m going to make a course about it.
But yeah, it’s really difficult because I think we’ve all got our own internal biases.
And that person, I’m sure she didn’t mean to upset me or offend me. It’s just the inherent bias that she has got about autism, whatever it is.
And so it’s really hard to kind of distance yourself and not get really, really angry and really upset.
And I often hear from people after being diagnosed, they’re like, I just want to educate the world.
And the depressing thing is the world is not going to listen.
You can’t make people care and you can’t make them see that about you.
The only thing you can control is yourself.
So it’s annoying by default.
It’s easier to just reach that level of self-acceptance for yourself, whether you have that diagnosis or not, and just be kinder to yourself.
If you can’t do something, it’s not because you’re not trying. There’s a good reason for why you can’t do it.
And maybe just go to sleep and try again tomorrow.
I mean, I just feel like the self-validation is probably always going to be the most important.
If you believe in yourself and you know who you really are, then that can conquer everything.
But I do think it is difficult.
And I think that, like you said, at the moment right now with all the shortage of medication, people are a version of themselves that they don’t know how to manage.
So I definitely want to ask a few questions about that because the majority of people out there with ADHD are unmedicated now.
And a lot of people who even have a prescription don’t want to choose the meds because they’re strong meds.
The stuff that we have to take is strong, so it’s scary because it can lead to addiction, it can lead to other side effects, and lots of people who are kind of anti that sort of stuff won’t take it anyway.