So why I said to get deep really quickly is because it’s also aligned with my lived experience.
Which was the in 2012, yeah 2012, I was right the beginning of my first term at university, I went on a night out with my friends.
Tiger Tiger.
Oh my God, I’ve been there. RIP. Best club ever.
You wonder, and you are missed.
We had an amazing time. The next day, I didn’t realize it was a hangover. I thought I had the flu. I was 18, so I didn’t get hangovers at the time.
Now, looking back, I know it was a hangover, which was a terrible mistake.
I thought I had the flu, took some medicine, and didn’t know I was allergic to the medicine.
I went blind within like five days. I could only see black.
The way I describe it, it was like looking through cling film. I could see colors and shapes at different like things, but I couldn’t see any fine vision. My fine vision was completely gone.
And it turned out that I’d hemorrhaged in the back of both of my eyes. I burst a load of blood vessels, which was really not good.
Medicine?
Yeah.
The flu?
Yeah.
Oh my God. Yeah, that’s terrifying.
Yeah, it was mad.
And when I look back on it, it was only when I was seeing a therapist for burnout a couple of years ago, and my therapist was like, “Wow, that was such an intense trauma to go through at 18.”
And I was like, “No, no, no. Trauma is like other things.”
So she was like, “No, you’ve not processed this yet.”
So we did a lot of that there.
But at the time, I was 18 and I was like, “I’m going to be fine. Everything’s going to be fine. I’m going to be okay.”
I went skiing two months later.
At this point, I wasn’t blind anymore. I had the vision I have now.
I had a panic attack skiing, obviously.
It was like, what the hell?
Oh my God.
I was literally… well, you’re 18. You think you’re invincible.
So after the month where I really couldn’t see anything and it started coming back, I was like, “I’ve already paid for it. I’m going to go. It’s going to be fine.”
I’m not a good skier. I’m not a confident skier. I was just like, “Let’s just go then.”
Yeah, it was good.
So all of that is to say where Interlude came from was that marriage of my lived experience and understanding that when I decided to go back to university—I was able to go back the next term—I was like, I have a choice.
I can either drop out and come back in a bit, or I can try and get this degree.
And I decided to try and get the degree.
And I realized with a bit of trial and error that if I worked myself down to the bone, my vision would literally shut down.
I’d be trying to do the work. I was doing English as well, so it really wasn’t very convenient.
Yeah.
I realized that if I had a nap, or I went for a walk, or whatever, I’d come back more refreshed and it didn’t take as long.
So I realized that taking these microbreaks was the best way to do it.
And I graduated, and that was great.
Then I did a master’s because I felt like I didn’t really get to have the full experience of my education.
So I did a master’s, and I used that approach and I did so well.
I really had the best time and did really well in it.
So I was like by the time it came to Will talking about this, to come back to a long story made short as well, I was like, okay, the science is saying this, and I’ve also done this myself.
So I feel really passionately about it.
I feel really strongly about taking ownership of the situation that you’re in to achieve the things that you want to do and to have the life that you want to have.
Because at the same time, I also wanted to go out. I wanted to have a social life.
I was at Cambridge, so it was really intense, and I still wanted to go out with my friends.
So how do I make all these things work?
So that was what the tech version of Interlude was to begin with.
Wow. I have so many questions because I’m just going back to my 18-year-old university days, and if that happened to me, I don’t think I would have been able to cope with that.
I just don’t think I would.
Certainly wouldn’t be skiing.
I would, but I wouldn’t.
I want to talk about that for a second because that takes a mega, mega mindset.
When you go through dark times, you think it’s the worst, especially when you’re 18 or 19. Every breakup is like the end of the world as well, right?
It is such a big deal. You don’t understand the grand scheme of things.
So run me through what was going through your mind.
You were 18, this happened to you. Did you not think, “Oh my God, this is the worst thing in the world. I’m never going to get a boyfriend because no one will date someone like this”?
Like, this is all going through my head.
I panicked when I got braces because I got them late at 17, and I ended up dating a complete loser because I was like, “I’m not going to get another boyfriend if I’ve got braces.”
To be completely honest, I only remember this once my mom said it, so maybe it was a recovered memory. Maybe I’ve built it up, I don’t know.
But only a couple of years ago, while I was doing therapy, I was saying to my therapist that I maybe hadn’t processed this.
And she was like, “Well, do you remember what you said?”
And I said, “No, not really.”
The whole first month is kind of blank.
This happened at the beginning of the Christmas holidays. My family is from Dublin, so I always spent Christmas in Dublin.
I just remember sitting on the sofa a lot because I didn’t really know about podcasts at that point, which would have been great because I would have just filled my time with that.
My thing at Christmas is my grandparents always buy me a big stack of books, and I just sit and read all holiday.
I couldn’t read anything.
So I remember just sitting on the sofa and listening to Christmas films.
I remember not being able to see my Christmas dinner and being like, “What do I do?”
But beyond that, I don’t really remember a huge amount.
So my mom said, “Do you remember what you said?”
I said, “No, not really.”
And she said that I was sat in the kitchen.
My gran and I are super emotional people. Like I said, I might cry during this, and I cry a lot.
My family will see me crying and be like, “Are you okay?”
I don’t remember saying this, but she said I was like, “Well, if I start crying, I’m never going to stop. So I’m just not going to get upset about it.”
So I don’t know if it was just a purely delusional like or if I was just going to block this out mindset and act like it wasn’t there.
It’s mad how quickly you develop coping mechanisms.
And then the anxiety shifts.
One thing that I have really struggled with is that I can’t see people’s faces very well.
If I move about half a meter further away, I couldn’t see your face.
But after few times of meeting, I can tell it’s you a mile off from how you walk and from your clothes.
So I genuinely don’t remember anything about anything. I just was very much one day that I like keep plodding on.
As like an insane defense mechanism for having this happen.
That’s what I’m saying. I don’t think I would have been able to do that at that age.
You think you’re so brave at that age.
Yeah.
At least you’re not. You’re just this fragile little teenager.
And that was your body and mind telling you, “This is how you’re going to handle this.”
It just shows you how insanely powerful the brain is because it was able to do that.
But tell me the good thing about it. You got your sight back. What happened?
You went from being blind, and now you can see. You’ve got an impairment, but how did you get that sight back?
It just… this is bonkers.
So what I have is called acute macular neuroretinopathy.
When I was diagnosed, there were 60 other people in the world who had this. Most of those only had it in one eye, and I’ve got it in both, which is why they were like, “You’re really rare.”
I was like, “Great.”
Also, normally it’s at the front of the eye. I have it at the back. So it’s just layers upon layers.
But of those 60 people, half of them stayed the same from when it initially happened, 25% got better, and 25% got worse.
And of the 25% who got better, no one had then regressed.
So I’m in the 25% that got better.
It went down, and then it went back up to exactly where it is now.
It kind of stopped and plateaued, and it’s been exactly the same for 12 years now.
So fingers crossed.
And the thing that’s amazing is that what this presents as is macular degeneration, which so many of us get when we get older.
And because we have an aging population, there’s quite even though this is so rare there’s a lot of my friends are doctors a lot of their parents are doctors and there’s a lot of hope that the kind of like the laser surgery won’t work for me because it’s the wrong part of the eye, but there’s a lot of hope that this will actually be something there is surgery for in the near future because so many of us are going to be dealing with something so similar.
So yeah, it just got incredibly better and better.
Until so now I have a blurry patch that’s about this big in the middle.
And then depending on the day, the rest of it can be a bit stress-related. If I’m ill, all those sorts of things.
Then I get migraines and aura and stuff like that.
But it’s very manageable compared to what it was.
So I’m very lucky.